Team Butterfly

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Jerusalem Marathon, Half-Marathon, & 10k

Jerusalem, Israel | March 17, 2017

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Whether you are an avid athlete or have never run a mile in your life, Team Butterfly offers an incredible and inspiring experience for an important cause. Join Team Butterfly in the 2017 Jerusalem Marathon, Half-Marathon, & 10k and be a part of the cure to EB! Raise money to fund research for a cure to “The Worst Disease You’ve Never Heard Of” and run with purpose through the beautiful streets of Jerusalem alongside fellow Team Butterfly runners. Join or donate now to help make an EB-free world.

1/50k births, ratio of EB prevalence in the US

75% of a child’s body can be covered with blisters and wounds

$10,000 monthly cost for wound care supplies for an EB family

32% of those born with EB in 2009 have succumbed

Our Mission Statement

To create a pain free world where no child, or family, will suffer from Epidermolysis Bullosa (EB), a devastating and debilitating skin disease. By raising awareness, supporting afflicted families, and most importantly funding medical research for a cure, we will reach our ultimate goal of an Epidermolysis Bullosa free world.

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09 March 2012

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A ‘Butterfly’ On Jerusalem Stone

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The skin on his feet is fragile as a butterfly’s wings. That, however, will not stop 18-year-old David Beiss from running the 10-kilometer route of the March 16 Jerusalem Marathon.

06 March 2013

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Charity Wins Over Runner

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Just meeting someone with EB and hearing about how he lives his day to day life was the push to make me run,” said Celine Banafsheha.

Next Event

Jerusalem Marathon, Half-Marathon, & 10k

Our Mission Statement

A ‘Butterfly’ On Jerusalem Stone

Charity Wins Over Runner

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